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Finding a Surgeon

I am 34 and healthy and have Dextracardia with situs inversus, never really remember having any problems even as a youngster growing up. It's very rare only 1 out of 130.000 people have Dextracardia....

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Re: Finding a Surgeon

hey, wow, thats gotta be tough. I hope you find one, and I'm sorry that it can't be as simple as pretending youre a mirror. That's what i was told when the doctors told me. i truly believe that the...

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Re: Finding a Surgeon

Hi there!My daughter had these same issues. There is an 'angel' among us. The group of surgeons att University of Michigan Mott Childrens Hospital. i know you are now an adult, but they have great...

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Re: Finding a Surgeon

I know that has to be tough! I get scared about my son having to go to the ER let alone knowing that he will be having surgery! I do know that he has an excellant doctor who will not let them order...

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Re: Finding a Surgeon

My friend has a son with Situs Inversus Totalis. I think there is also some other issues. He cant swallow anything w/o asperating into his lungs. He is 8 now and is still being fed by a tube. The...

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Re: Finding a Surgeon

It's been quite a while since the original post. Did you ever get that surgery? If so, how did you find a surgeon? Also, would you mind telling me a bit more about the abdominal pains? I have had...

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